February 20, 2004

Day 273




2 Corinthinians 5:1-9 For we know that if the earthly tent which is our house is torn down, we have a building from God, a house not made with hands, eternal in the heavens. For indeed in this house we groan, longing to be clothed with our dwelling from heaven, inasmuch as we, having put it on, will not be found naked. For indeed while we are in this tent, we groan, being burdened, because we do not want to be unclothed but to be clothed, so that what is mortal will be swallowed up by life. Now He who prepared us for this very purpose is God, who gave to us the Spirit as a pledge. Therefore, being always of good courage, and knowing that while we are at home in the body we are absent from the Lord— for we walk by faith, not by sight— we are of good courage, I say, and prefer rather to be absent from the body and to be at home with the Lord. Therefore we also have as our ambition, whether at home or absent, to be pleasing to Him.

I just found out yesterday that David's admission into the Roger C. Peace rehab hospital here in Greenville will not happen until 2 weeks after he receives Botox injections.  (This is probably also assuming that he gets good results from the injections.) The pre-approval for the Botox injections got "lost" in the insurance company's pre-determination department. Supposedly our claims manager marked it urgent and sent it to the medical director this morning.  She was to call us this afternoon with a progress report. We haven't heard anything.  Now it's the weekend, so we won't know anything more until Monday.

There are several reasons we would like to have David admitted to RCP: more aggressive therapy (we hope); more frequent therapy; supervision by a rehab doctor; they can conduct a swallow study to see if David is ready to eat real food (of course I am sure that he is ready for that!); they have access to adaptive "tools" that David could use for communication.  I am anxious for us to come up with a way to communicate with him. I am encouraged by David's increased awareness of himself.  He seems to be bothered by conditions that are not to his liking. (Remember, he has been weaned off of the anti-seizure medication and the type of muscle relaxer was changed. Both of these changes were a reduction of sedating drugs.)
David has gotten very picky! That is to say that he picks at things with his right thumb and forefinger. One day I came in his room to find that he had picked off a medication patch from its place on his shoulder.  He also picks at the PEG feeding tube. (I'm afraid that he is going to pull it out!) When his therapists touch his left shoulder, it apparently causes him some discomfort because he will bring his right arm up to try to stop the pain. David's occupational therapist, Tony, is trying to teach David to move his arm for "yes" and his leg for "no"! I have seen him respond correctly several times. Tammy, the myo-fascial, sacro-cranial therapist is encouraged by what she is able to accomplish each week.  We are waiting for Dr. Siddens to reschedule David's next eye procedure, which was supposed to be next Tuesday).; We thought David would be a RCP and Dr. Siddens could easily get over there to do the procedure.  Since that is down the road a bit, Dr. Siddens is trying to schedule a trip out to Summit Place.

Psalm 73:23-28 "Nevertheless I am continually with You; You have taken hold of my right hand. With Your counsel You will guide me, And afterward receive me to glory. Whom have I in heaven but You? And besides You, I desire nothing on earth. My flesh and my heart may fail, But God is the strength of my heart and my portion forever. For, behold, those who are far from You will perish; You have destroyed all those who are unfaithful to You. But as for me, the nearness of God is my good; I have made the Lord GOD my refuge, That I may tell of all Your  works."



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